I always say "I'd rather have someone tell me, I'm a paranoid mother, than 10 years down the road, tell me I should've done something sooner."
But just because I'm proactive and hell bent on advocacy, do not think for one minute it can't affect me that much!
When you can't go food shopping with them due to sensory overload. Because if you do, you are literally putting your child in PAIN from the bright fluorescent lighting, deafening crash of metal carts & thumping of feet!
Yes, it can be challenging and emotionally draining at times. Yes, you can second guess yourself as a parent and feel defeated by your own self-doubt. However, when your little warrior makes eye contact, or smiles, holds your hand, hugs you, says one little word (signed or verbal) you remember why you're in this fight. And you realize that you're so much stronger, than your weakest day.
Because you have to be, because they need you to be! We are the voices of our non-verbal children. We are the gentle comfort, in their world that spins with chaos. We are their North Star guiding them home, when they feel lost and alone.
My son, is my hero. He has taught me more about life and love, than I could have ever imagined. I only pray that someday I can return the favor. I am my sons biggest fan and advocate. I've watched him struggle and fight for every single milestone he had achieved at the age-appropriate time, and than totally lost at sixteen months.
I've fought against doctors who were to busy to see the red flags, that were flying in front of all of us. I've went up against loved ones who would rather stay comfortable in denial, rather than except that this is simply a part of who my son is.
One of the most difficult aspects of an ASD diagnoses, is not the diagnoses itself.
It's the outsiders you will need to enlighten about it. And through it all you wouldn't change one thing about your little warrior, even if it were possible. They are a puzzle piece of beautiful perfection, gifted to you by serendipity. And they call you mom...
Instead of reflecting on the hardships, what are some of the positive aspects of autism you've experienced?